A Metro Detroit family hopes a program that helped them during their young son’s final months can help others, as well.
Judah Lieberman was diagnosed with metachromatic leukodystrophy, a rare hereditary disease that affects the central nervous system. After several months, hospice care was suggested for the toddler.
The program from Angela Hospice provides a team that helps families when a child is in hospice care.
Amanda Davis helped administer medicine and give Judah’s parents, Lindsey and Ed a break. She also played with Judah’s siblings, Silas and Lucy, so they didn’t feel forgotten during the difficult time.
Judah died in March at 3. His parents want other parents to know about My Nest is Best and how it can assist families dealing with similar situations.
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